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Category Archive for 'Caregiver Tips'

  “Has anyone seen my brain? It ran off flailing and screaming about being overwhelmed this morning. I’d really like it back.” – Unknown   This week I’m dog sitting nearby at someone’s home (not my usual, they usually stay at my house). Anyway, it’s a good quiet time for me to ponder all the […]

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“Each of us has his own rhythm of suffering.” – Roland Barthes We have lost many this year to MM and other cancers or health issues. Having conversations with my many friends, both personally and via the net, one thing comes through loud and clear, getting through milestones and anniversaries is very hard. With the […]

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“Communication is a continual balancing act, juggling the conflicting needs for intimacy and independence. To survive in the world, we have to act in concert with others, but to survive as ourselves, rather than simply as cogs in a wheel, we have to act alone.” – Deborah Tannen Several recent conversations and postings with caregivers and […]

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“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” – Brian Tracy Needing or asking for help from others often pushes us way outside our comfort zone. We are the ones […]

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Fear

“Fear is only as deep as the mind allows.” – Japanese Proverb There are times that a topic seems to speak to me with a mega phone. It comes from various sources and begins to clobber me over the head as something that needs to be spoken out loud, and in my case, written here, hitting […]

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“Being there and helping someone I love, in the leaving of their earthly body, was a profound gift that I was honored she allowed me to do for her. In many ways it was she who gave me the gift and not the other way around.” Lori Puente, on the death and dying of her […]

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“If you realize that all things change, there is nothing you will try to hold on to. If you are not afraid of dying, there is nothing you cannot achieve.” – Lao Tzu From Gail Sheehy’s Eight Labyrinths and the book Passages in Caregiving: . . . . . . . . . VII. The In-Between […]

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“The secret of health for both mind and body is not to mourn for the past, not to worry about the future, or not to anticipate troubles, but to live in the present moment wisely and earnestly.” – Siddhartha Gautama (Buddha) From Gail Sheehy’s Eight Labyrinths and the book Passages in Caregiving: . . . […]

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“I had an inspiration while walking a labyrinth. You go in circles, sudden twists and turnings. It’s a lot like the surprises and complications we face on our journey as caregivers.  A labyrinth has one true path. It can eventually lead us to the center, but you can’t see the path ahead. It’s not predictable.” […]

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“Gratitude is an art of painting an adversity into a lovely picture.”  – Kak Sri It is not an easy task to find something good in the middle of a cancer diagnosis. As you travel down this path for a while, trust me, you will indeed find new and wonderful things. Hang in there. Here […]

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WEGO HealthTV Debut

  “The human spirit is stronger than anything that can happen to it.”  -C.C. Scott  Here’s the link to the blood cancer channel – and to my “Food Portion Trick” on WEGO Health TV’s new health channel. Another bright idea to bring patients and caregivers together online.   0

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“Drugs are not always necessary.  Belief in recovery always is.”  – Norman Cousins You’re going to start treatment. You are going to be receiving Melphalan as one of the chemotherapy cocktail drugs. This is what you need to know. Sadly, it is just one more thing YOU have to be proactive about – maybe. Some nurses, […]

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  “Most of our obstacles would melt away if, instead of cowering before them, we should make up our minds to walk boldly through them.” – Orison Swett Marden I wrote this piece for The Myeloma Beacon. I hope it helps those of you struggling with chronic pain, which can be so debilitating, both physically […]

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“Every man dies – Not every man really lives.” – William Ross Wallace As we have all watched and heard about the disaster in Japan of such proportion its hard to get my mind around just how devastating this disaster has been in its size and scope. Intellectually I think I get it, but I […]

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Dirty Dozen

“We are living in a world today where lemonade is made from artificial flavors and furniture polish is made from real lemons.”  – Alfred E. Newman We are debating treatment in Myeloma, Stem Cell Transplant vs management. We are debating maintenance therapy or not. Politics, terrorism, all manner of things. It seems that it is […]

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Dental Hygiene

“Happiness is your dentist telling you it won’t hurt and then having him catch his hand in the drill.” – Johnny Carson Most of us on are on biophosphates to strengthen the bones after the onslaught of Myeloma. Before you got on this infusion, done every several weeks or few months, you needed to get a […]

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Mission: to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. 0

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“Do what you can, with what you have, where you are. – Theodore Roosevelt “What do you do to keep yourself in good shape and spirits as a caregiver, and what advice would you offer other caregivers about caring for themselves?” – a Q&A question at a recent talk I gave and a great question! 0

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Protein Powder

“He that takes medicine and neglects diet wastes the skills of the physician.” – Chinese proverb When my mother was ill with cancer and found it difficult to eat “enough” to satisfy my concerns, I began a fervent search for a supplemental way to provide some protein into her diet. 0

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“It is one of the most beautiful compensations of life, that no man can sincerely try to help another without helping himself.” – Ralph Waldo Emerson Angie, a MM caregiver I met in Little Rock, asked me to write about caregiver fatigue. Instead, I’m going to write about the value of particular vitamins that are […]

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