A Caregiver's Inspirational Journey Through Cancer
Aug 21st, 2011 by Lori Puente
Chenille Cones Arrived!
Wow! What a couple of weeks I have had with all manner of things in life and it doesn’t look like it’s slowing down anytime soon!
Aug 17th, 2011 by Lori Puente
I don’t know about you, but I’m getting a bit charged up these days with Medicos expressing their opinions about the Quality of Life of a patient after treatment of MM. It comes up a lot if they are in the NO SCT camp, naturally. But it isn’t about SCT or NO SCT, Single or Tandem, Allo vs Auto that I want to focus on here. I want to talk about: Continue Reading »
Aug 16th, 2011 by Lori Puente
“But there are advantages to being elected President. The day after I was elected, I had my high school grades classified Top Secret.” – Ronald ReaganI don’t know if this happens to all of you, but it happens to me – every fall. When I’m out and about seeing all the school supplies overstocked in all the stores I have this URGE, to delve into buying cool new stuff from art supplies to backpacks. It’s a bit of a curse sometimes.
Now that my “children” are no longer “kids”, no school supplies for me. Sniff. But I find myself still being terribly distracted by all the colors and cool stuff for Back to School!
Aug 14th, 2011 by Lori Puente
Aug 11th, 2011 by Lori Puente
David Emerson’s Story, A MM Patient
You can watch it
Dr. Burzynski’s letter to Suzanne Somers regarding the Dateline story.
YouTube Q&A after Film Debut in Newport Beach
Burzynski Patient, Jodi Gold, Rode in Tour for Hope with Armstrong
Dr. Oz interviews Dr. Burzynski
Great Day Houston Interviews Dr. Burzynski Part I
Aug 11th, 2011 by Lori Puente
Microscopy Image by Dr. Carl June - T-Cells
It seems it has been a bit of a banner couple of weeks in the research area of blood cancers. I’m very pleased. This great story is working it’s away around, as well it should. It sounds similar to the Natural Killer Cells in Arkansas and the efforts being made at MD Anderson in their vaccine therapy. I don’t care who gets there first as long as someone does. Anyway, have a read.
Aug 7th, 2011 by Lori Puente
Gregg, Me, Gail (Dave's reflection in the window!)
What a GREAT SURPRISE! My next door neighbors from our home in Olney (Brookeville, MD) were visiting the west coast and on their way back from Tahoe to San Francisco to catch a redeye they stopped in to see us!
Aug 6th, 2011 by Lori Puente
For those of you who are looking for a management route for your Myeloma, Dr. Berenson is a physician to consider. He has long been a “less is more” physician in treating Multiple Myeloma and seldom a proponent of SCT. Good data in this interview on a myriad of aspects concerning Myeloma. No matter where you are or what treatment path you have chosen, overall, this interview should be encouraging to you. This is an ongoing series offered by Patient Power. Check them out and sign up for alerts.
Ask Dr. Berenson: Updates on Myeloma Treatment and Bone Health (August 2011) from Patient Power® on Vimeo.
Aug 6th, 2011 by Lori Puente
Blood Journal
I’m really loving the new Facebook Myeloma Support Group! Maureen mentioned this article and I looked it up (I’m getting good at that part these days). You can see the whole article by selecting the PDF on the right side bar. It will open in its own full window on your computer.
Aug 5th, 2011 by Lori Puente
“There is no medicine like hope, no incentive so great and no tonic so powerful as expectations of something better than tomorrow.” – Orioson Swett MardenGreat article, “The Role of Autologous Stem Cell Transplant in Multiple Myeloma” over at The Myeloma Beacon authored by S. Vincent Rajkumar, M.D. (a professor of medicine at the Mayo Clinic in Rochester, Minnesota. His research focuses on clinical, epidemiological, and laboratory research for myeloma and related disorders. Dr. Rajkumar writes a quarterly column for The Myeloma Beacon).
Aug 5th, 2011 by Lori Puente
“Researchers Find Way to Help Donor Adult Blood Stem Cells Overcome Transplant Rejection” – Science Daily Article
Margaret posted this story link over at the Multiple Myeloma Support Group (Facebook), which I continue to encourage you to join, that would be AMAZING if it pans out in reality.
Aug 4th, 2011 by Lori Puente
There is a terrific blog post over at Margaret’s Corner on the continuing debate over Cure vs Control of Multiple Myeloma. I urge you to have a read and maybe you will understand further for those of you newly diagnosed the importance of more dialog with different doctors and facilities, before significant treatment.
Aug 1st, 2011 by Lori Puente
“Scientists would like to know more about how cells work. But seeing what’s happening inside a cell isn’t easy. It’s dark in there, and even if you shine a light, many of the critical chemical reactions are invisible.” – Excerpt I have no idea if this will ever pertain to those of us in Myelomaville, but it is interesting nonetheless and I could see that perhaps one day, it would be deemed helpful in the study and research of MM and perhaps clues to it’s cause and cure. It is a fascinating little story if you have the time. I recommend listening to the audio version.
Synopsis is they have figured out a way get light inside the cell to have a better look.
Jul 30th, 2011 by Lori Puente
Hamada
Susie Hemingway shared on her facebook page that one of her poems has been “selected to be published in an anthology – Midlands & The East – “The Gentleness Of Your Silence” written in 2010 will be kept at the British Library and further libraries across the UK and Republic of Ireland, providing a lasting record of this published work.”
Susie is a GIANT Continue Reading »
Jul 28th, 2011 by Lori Puente
“Creativity is allowing yourself to make mistakes. Art is knowing which ones to keep.” – Scott AdamsI’ve been busy with a myriad of things of late and enjoying myself as well as feeling a tad overwhelmed. My new logo has been designed, courtesy of my former boss, dear friend, and Godfather to my children, Ron Baker. Didn’t he do a nice job?
Jul 22nd, 2011 by Lori Puente
Link will get you to guide
Jul 22nd, 2011 by Lori Puente
Where do I start?
I will leave this up for awhile, so look for newer posts below…
I have a stats program on my blog that tells me what folks are reading when they stop by. I have noticed in the last month that I probably have a lot of new readers. I’m sorry that you have MM, but I’m glad that you have found me. Continue Reading »
Jul 20th, 2011 by Lori Puente
A fellow TT-er and I were corresponding recently about an article we read and the study done. One of my favorite annoying types where they go back and look at collected data that is completely unrelated to what they are looking for and put together an analysis of what they see. In other words, it’s what I like to call a dead study. It’s not a currently active study of patients (often from different facilities and treatment protocols), but trying to piece together in hindsight, some data to prove or disprove something. I’m not saying these types of studies don’t have some value, but for me, they have not proven to be of much value in the way they are administered in Myelomaville. There are too many variables and subjectivity in what they can discount or count in their analysis. Anyway, we were both, independently annoyed by it and that started another line of dialog and I ended with “are we just TT Snobs?” We laughed, but in all seriousness, are we? Continue Reading »
Jul 19th, 2011 by Lori Puente
Common Barn Owl
We have known for some time we have owls in the BIG Valley Oak Trees in the undeveloped lot behind our house. We can hear them (screeching) and once in a while we see something really BIG flying about at night time. Since “birds” don’t fly around at night and it’s too big to be a bat, we have presumed that it was an owl. I was pretty sure there were two, but we were just making guesses. Continue Reading »
Jul 16th, 2011 by Lori Puente
“If you understood the extraordinary gifts that every single challenge in your life makes possible, even inevitable, you’d celebrate your challenges, new and old alike, as the omens that they are of new beginnings and spectacular change.” – 
