“What you spend years building may be destroyed overnight. Build anyway.”
It surely has been a long time since I have posted! Some of us have stayed in contact on FaceBook in one of the MM groups and so I haven’t felt overly disconnected, but disconnected nonetheless. What can I say, but we are doing extremely well. The kids are pretty grown up, self sufficient, enjoying their lives. Dave and I are back to the grind so to speak, but with interesting changes. We continue to be happier than we have been in our three plus decades together. Dave continues to work entirely too much – that didn’t change. What did change is he enjoys it more. Who’s to say he wouldn’t have anyway being more “mature” at this point. Or maybe it’s the company, his colleagues, the work itself? I don’t know, but it’s just nicer, even if I wish he could manage it a little better. What has changed is that he can truly leave it and enjoy our time together or visits from friends and family. He doesn’t have that distracted “I’m thinking” look he used to have no matter what we were doing. It used to annoy the hell out of me. 🙂
He has been working out with our amazing trainer Lou now for over a year. It has been a long hard road but worth every bump in it. Dave is incredibly strong now. His stamina makes me feel sloth-like. In terms of his immune system, per our last visit to UAMS, no real recovery. His WBC is still low and other things as well. But he is stable, and by outward appearances, seems like he has fully recovered. We are still thinking of doing twenty therapeutic HBOT (Hyperbaric Oxygen Treatments) to boost his stem cells and stuff. It will have the added benefit of continuing to repair the radiation damage to the skin. As life seems so normal though, we (namely me) are a bit slow (sloth-like) on getting this stuff scheduled!
We are late with our current check-up in Arkansas, largely due to Dave’s recent extensive business travel and then with the holidays LOOMING, there is the usual angst about keeping everything together and organized that seem to prevent him from making a commitment to get there.
I have been traveling a lot to visit my sister, our daughter, friends. Galavanting around doing fun things with my weaving and spinning adventures. I’ve been very lax getting any weaving actually done, although I have been continuing to garner knowledge, materials, ideas, etc.
So while I have much catching you up to do, here is a snippet of my latest creations.
I continue to receive traffic on my blog, albeit much less since I’ve been so inactive. I still receive some emails from folks from time to time and try to get on those as soon as possible, although I still owe a few a response. It’s weird to me sometimes how much I’m struggling at times and then at other times I feel really great. I try not to analyze it too much. Some of it seems fairly normal to me and then at other times I chastise myself for not appearing to be happy. I am happy, but some days I still feel a bit melancholy. I think about my friends who have not made it. Their caregivers struggling on their own. Other friends who have died from other cancers. Life with memories cut short abruptly. Those who are struggling right now with relapse or newly diagnosed. Sometimes I think it’s a lot to take on and other times it seems very clear to me that the connection must be maintained, if for no other reason than to offer hope. I remember clearly how important that hope was to me over 5 years ago. FIVE YEARS AGO! Dave has already surpassed every expectation (not mine of course, I’m his wife, we are never satisfied!!!), in terms of the medical community.
Anyway, hopefully I will get back on track with a few things here and catch you up on many happenings in our life. Dave replaced my macbook for me recently, which is very helpful in that effort. I was becoming extremely frustrated with my old one being difficult to do even the simplest of tasks.
I hope you are well, that your treatment is accomplishing all your goals, your checkups are stellar and you are finding ways to laugh.