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Category Archive for 'Caregiver Thoughts'

The Gifts in Life

“Let us be grateful to people who make us happy, they are the charming gardeners who make our souls blossom.”  – Marcel Proust The new year, following holiday festivities that sometimes seem to never end and have angst and stress for some, always brings about a time of reflection for me. While later in my life […]

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Mind, Body, Spirit

“You don’t have a soul. You are a Soul. You have a body.”  – C.S. Lewis I use to ponder this as a pre-teen, in my confusions rolling around in my head trying to understand a Sunday School lesson, or a conversation with another pre-teen about God. I had come to this conclusion and actually […]

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“Instruction does much, but encouragement everything.” – Johann Wolfgang von Goethe Last night Dave and I attended a MM support group holiday meeting near Spring Hill, Florida, complete with a delicious catered meal and a sponsored patient ambassador presentation. Two years ago when I came to our in-laws for the holidays I was invited to […]

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“Each of us has his own rhythm of suffering.” – Roland Barthes We have lost many this year to MM and other cancers or health issues. Having conversations with my many friends, both personally and via the net, one thing comes through loud and clear, getting through milestones and anniversaries is very hard. With the […]

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“A piece of me goes with them.” – Lori Puente We lost another giant soul in Myelomaville last week (Hanna – Margaret’s heartfelt tribute). Some of us knew it was coming, but it still hits you hard. Every time this happens I feel sadness and meloncholy. Each time someone relapses and goes back for more […]

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“Attitude is a little thing that makes a big difference.” Winston Churchill This continues to be a controversial topic. There are some scientific studies and research that have been going on forever on this. It’s a difficult test to run and quantify accurately in a way that is definitive.  I tend to be cautious when […]

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Musings

“There are things we don’t want to happen but have to accept, things we don’t want to know but have to learn, and people we can’t live without but have to let go.” – Unknown First of all, we had another stellar report from our recent post maintenance therapy check up in Arkansas. David continues […]

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“Maybe Lori will take a break from her Myeloma Holiday and chime in.” – H.O. Indeed! I would have never thought there could be such a thing as a Myeloma Holiday. Do you ever get away from it? Well, for some of us, yes. For many, sadly, no. Thankfully Dave and I fall into the […]

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Myeloma Cure Panel broadcast We had a very informative Cure Panel discussion on myeloma on Blogtalkradio with Dr. Parameswaran Hari as myeloma expert on 25th September at 4:30 pm EST.  The show was co-hosted by Gary Petersen and had over 40 live callers. On the panel we had Pat Killingsworth, Matt Goldsman, Keith Virgin, and Lori […]

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Andrew Schorr catches up with Dr. Bart Barlogie in Barcelona at a conference to ask the question, if emphasis is being pushed to make Myeloma a chronic disease is cure still a priority? An excellent interview that of course has some of the scientific complexities that make it difficult for the average layperson to understand, […]

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MIA, AWOL, APB!!!!

“Preaching for life changes requires far less information and more application. Less explanation and more inspiration.” — Andy Stanley MIA: Missing in Action AWOL: Absent With Out Leave APB: All Points Bulletin I didn’t intend in any way shape or form to be absent from you for so long! I have much to catch up on […]

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“Let no one think that flexibility and a predisposition to compromise is a sign of weakness or a sell-out.” – Paul Kagame The two things that helped me through this ordeal (and other challenges in my life) is flexibility and adjusting my point of view. Karen touched on this in her insightful comment on my last […]

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“Superman’s not brave. You can’t be brave if you’re indestructible. It’s every day people, like you and me, that are brave knowing we could easily be defeated but still continue forward.” – Unknown In my last post regarding Dave’s exercise update I mentioned that our trainer is encouraging Dave to revitalize and renew his love for […]

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“I have to exercise in the morning before my brain figures out what I’m doing.”  – Marsha Doble I thought you might like an update on Dave’s progress. As the week wore on heading to his first day, his confidence began to wane. My little humorous quips were met with distress and annoyance. I toned […]

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“The greatest discovery of the 20th Century is that our attitude of mind determines our quality of life, not circumstances.” – William James My interview is up over at CureTalk.   0

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“Communication is a continual balancing act, juggling the conflicting needs for intimacy and independence. To survive in the world, we have to act in concert with others, but to survive as ourselves, rather than simply as cogs in a wheel, we have to act alone.” – Deborah Tannen Several recent conversations and postings with caregivers and […]

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“Every day is a new chance to choose. Choose to change your perspective. Choose to flip the switch in your mind. Turn on the light and stop fretting about with insecurity and doubt. Choose to do your work and be free of distraction. Choose to see the best in someone, or choose to bring out the […]

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“Lack of activity destroys the good condition of every human being, while movement and methodical physical exercise save it and preserve it.”  – Plato For those of you who made a wish for Dave on my behalf, thank you! 2

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“Drag your thoughts away from your troubles… by the ears, by the heels, or any other way you can manage it.”  – Mark Twain (Neat, I found a quote on this from Mark Twain after my escapades in Tahoe with him!) As caregivers, and I’m sure as patients, when we hear cancer and, for us, […]

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“A true friend is someone who thinks that you are a good egg even though he knows that you are slightly cracked.” – Bernard Meltzer When we moved to California from Bangor, Maine I was in the 2nd grade. The weather here was conducive to wonderful long hot summers with loads of lakes and rivers to […]

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