Mar 4th, 2011 by Lori Puente
“Nobody can do everything, but everyone can do something.” – Author Unknown
I come from a long line of folks in my family who are busy doing something for others. Either a moment of help to a friend or family member or involved projects in their community of commitment and duration. To me it is like going to church every Sunday or something. It’s simply what you do.
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Tags: EG Teen Center, family services, grandparents, lachback reading, mother, My life, postaweek2011, Teen Idol, volunteering
Posted in Misc, Our Life | 3 Comments »
Mar 2nd, 2011 by Lori Puente

“Just living is not enough. One must have sunshine, freedom, and a little flower. – Hans Christian Andersen
Another fabulous post by Sean Murray of Myeloma Youreloma over at The Myeloma Beacon. Sean’s column is always worth waiting for. You will enjoy this one a great deal. So in case you need a ‘teaser’, do you know what your ‘L-Spike’ is?…
Tags: postaweek2011, sean murray, The Myeloma Beacon
Posted in Multiple Myeloma | 2 Comments »
Mar 1st, 2011 by Lori Puente
Go over to FacebookLinkHere and vote for Mindy’s Myeloma Foundation for her friend Phil. You need a FB account. I will leave this up until the voting is concluded, April 15th. Like many of these contests you can vote EACH DAY! (ARGH! Do what you can.) Good Luck Mindy! (To see related post, click on the Post title and it will come up at the bottom)
New posts are below…
Tags: contest, Mindy's Soap Box, Phil, postaweek2011
Posted in Misc, Multiple Myeloma | 3 Comments »
Mar 1st, 2011 by Lori Puente
AN ODE OF ENGLISH PLURALS
We’ll begin with a box, and the plural is boxes,
But the plural of ox becomes oxen, not oxes.
One fowl is a goose, but two are called geese,
Yet the plural of moose should never be meese.
You may find a lone mouse or a nest full of mice,
Yet the plural of house is houses, not hice.
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Tags: ode to english plurals, postaweek2011
Posted in Uncategorized | No Comments »
Feb 28th, 2011 by Lori Puente
“Kindness is a language which the deaf can hear and the and the blind can see.” – Mark Twain
In the midst of our life’s upheaval I ventured into our LYS (Local Yarn Shop) in Elk Grove, a bit in a daze, in an effort to extrovert myself out of what was happening in my life into an arena of creativity. While in Little Rock I had found their LYS and resurrected this old ability my grandmother taught me as a kid and found something to do that gave me pleasure. It’s one of those things that makes you friends, “What are you making? The yarn is beautiful? Maybe I should get myself knitting while I’m sitting here for hours.”
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Tags: Anna, blue heron yarn, breast cancer, elk grove ca, fiber arts, knitting, postaweek2011, the yarn shoppe
Posted in Misc, Our Life | 4 Comments »
Feb 26th, 2011 by Lori Puente

“I love you not only for what you are, but for what I am when I am with you. I love you not only for what you have made of yourself, but for what you are making of me. I love you for the part of me that you bring out.” – Roy Croft
David over at www.workingwithme.com, a myeloma blog/website is a relatively “new” fellow myeloma warrior acquaintance for me. He has a gift. A gift of finding lovely music with heartfelt lyrics. I’m sure David has many gifts, but this is the one that I was first drawn to.
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Tags: Hamada, I won't let go, Jim, loss, lyrics, Mike, music, postaweek2011, Rascal Flatts, Vern, workingwithme
Posted in Caregiver Thoughts, Misc, Multiple Myeloma | No Comments »
Feb 25th, 2011 by Lori Puente
“Knowing a great deal is not the same as being smart; intelligence is not information alone but also judgment, the manner in which information is collected and used.” – Dr. Carl Sagan
Don’t you just LOVE how there are at least two names for every drug you are on! ARGH!
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Tags: apheresis, bone pain, Filgrastim, growth factor shots, neupogen, postaweek2011
Posted in Multiple Myeloma | 27 Comments »
Feb 24th, 2011 by Lori Puente

RobinScarf
“Ask and you shall receive.” – Many spiritual teachings
What a whirlwind week! But I can’t help but be over the top excited about how quickly things have come to pass. Imagine a simple, tiny, little thought, so many years ago, “Oh, I would like to do that,” has turned into a HUGE reality for me personally, of great proportion.
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Tags: etsy, Jane Patrick, name, postaweek2011, rigid heddle loom, storefront, tumbleweft, Weaving, website
Posted in Misc, Our Life | 5 Comments »
Feb 23rd, 2011 by Lori Puente
I’m leaving this on top for a few days, so look below for new posts. Mindy’s contest will be ready to start voting today. It is on a Facebook so you will need a FB account. Spread the word and vote. FacebookLinkHere

Phil
“…I have known Phil since the 7th grade. All through out high school he was a constant presence in my life. He is the brother that I never had, and because he is family to me, I am going to do whatever it takes to help him.” – Mindy
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Tags: contest, Mindy's Soap Box, MomCentral, Phil, postaweek2011
Posted in Misc, Multiple Myeloma | 2 Comments »
Feb 23rd, 2011 by Lori Puente

Dave, Christmas Cruise 2007
“Accept the challenges so that you may feel the exhilaration of victory.” – General George S. Patton
A big win for Dave yesterday! He played 18 holes of golf!
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Tags: CalMac, challenge, Dave, golf, postaweek2011, success
Posted in Caregiver Thoughts, Misc, Multiple Myeloma, Our Life | 5 Comments »
Feb 22nd, 2011 by Lori Puente
“They (children) will do as well as you do.” – Unknown
As I was writing about this, I had a thought about a story a fellow once told when speaking to a group about enthusiasm, point of view, children, presentation, etc. He was probably a motivational speaker/psychologist type. I don’t remember, it was years ago, but I remember the story clearly, as it resonated with me.
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Tags: Cancer, postaweek2011, telling our children, turtle story
Posted in Caregiver Thoughts | 2 Comments »
Feb 20th, 2011 by Lori Puente

“Life can have challenges that seem to be trying to crush the soul. Art reminds us that it is simply impossible to destroy the essentials of who you are – an artist, a creator of beautiful things.” – Lori Puente
Before Dave got sick, I still had some dreams I hoped to embark on. One of them was an old affinity and yearning to weave, beautiful handmade fabric, what is often referred to as “essential art”. I’m rather practical and so to venture into a creative pursuit that has practical use, i.e., you can wear it, was particularly appealing to me. I got just a tad waylaid on my “grand plan”. Such is Life.
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Tags: art, postaweek2011, Weaving
Posted in Misc, Our Life | 7 Comments »
Feb 20th, 2011 by Lori Puente
“Life may not be the party we hoped for, but while we’re here we should dance.” – Unknown
Late Wednesday evening Dave gently announced to me that he wanted to have a dinner party Saturday, with some of his guys and their families at work. WHAT? Continue Reading »
Tags: dinner party, postaweek2011
Posted in Our Life | 2 Comments »
Feb 19th, 2011 by Lori Puente

Bonita
“Beware of Jumping Goat” – Sign on my sister’s yard
Last year my sister’s goat had twins, which is usual. One of them didn’t make it, as the father rolled on it by accident. It was “Babs” first birth. She didn’t seem to know what to do and it was February in Northeastern Pennsylvania, so Lynn took the baby goat up to the house and began to care for and bottle feed it. She named her “Bonita” because she was just so pretty and cute. She wasn’t much larger than her small dog. Before Lynn knew it Bonita was jumping on the couch, the washing machine, the coffee table, everywhere. She would call me regularly with “goat updates”.
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Tags: goats, postaweek2011
Posted in Our Life | 2 Comments »
Feb 18th, 2011 by Lori Puente
“We worry about what a child will become tomorrow, yet we forget that he is someone today.” – Stacia Tauscher
My wonderful sister, who I have discussed before, who has had years of struggle with sobriety and lived with my mother, and has a terrific son, my nephew, Drew. When my mother was ill and could no longer go to her home and stayed with me, my sister and her son were left to care for her home and her animals on their own. Drew was 13, a tough age. Lynn would stop by everyday on her way home from work and stay for a long time. Essentially leaving Drew to fend for himself. Repeatedly I reminded her she had a son to think of and care for. Repeatedly I reminded her he needed to come and see Grandi. It went unheeded. Drew never saw his Grandi again. It broke my heart as I knew that it was not a proper way for him to grieve and be a part of the process, like my children were. Grandi was an integral part of his entire life. It was heart wrenching.
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Tags: Cancer, children, Drew, postaweek2011
Posted in Caregiver Thoughts | No Comments »
Feb 17th, 2011 by Lori Puente
“Children adjust as well as you do.” – Unknown
Telling our children we have cancer or someone they know and love has cancer is very difficult and often poses mental dilemmas and anguish for a parent. Young or old, its one of the many, many, things that cause stress and anxiety in addition to the cancer diagnosis. The collateral damage, the fallout, if you will.
So what do you do?
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Tags: Cancer, children, postaweek2011
Posted in Caregiver Thoughts | No Comments »
Feb 17th, 2011 by Lori Puente
“Happiness is a warm puppy.” – Charles M. Schulz
I love animals, period. We have had dogs, cats, horses, birds, fish, turtles, and then my grandparent’s farm in NE PA allowed for all kinds of interesting animal world experiences. But I have also not had animals for long periods of time in my life. They bring much to the spirit and daily life, but they are responsibility and work that sometimes just isn’t conducive to what is going on in your life. So I have never been one to have an animal unless I felt the environment was right for them as well as me. I love them too much to give them less than a reasonable home.
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Tags: Kipmeister, postaweek2011
Posted in Our Life | 8 Comments »
Feb 15th, 2011 by Lori Puente
“True heroism is remarkably sober, very undramatic. It is not the urge to surpass all others at whatever cost, but the urge to serve others at whatever cost.” – Arthur Ashe
According to the data about Multiple Myeloma, the largest demographic are African American Males. And yet, while treating in one of the largest facilities in the world, I was struck by how few black males I saw being treated for MM. As a whole, I see very few and know zero. Why is this? I have asked myself many times, “Where are they?”
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Tags: african american males, demographics, postaweek2011
Posted in Multiple Myeloma | 4 Comments »
Feb 14th, 2011 by Lori Puente
People say that losing weight is no walk in the park. When I hear that I think, yeah, that’s the problem. – Chris Adams
When I meet cancer/MM patients who exercise vigorously and look terrific, I’m envious. Not that envy is much of characteristic I’m burdened with (thank goodness), but you get the idea. It has been one of the last and biggest hurdles I have had as a caregiver to get Dave (and myself) to do.
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Tags: exercise, postaweek2011, walking
Posted in Caregiver Thoughts, Misc | 5 Comments »
Feb 14th, 2011 by Lori Puente
“Anyone can catch your eye, but it takes someone special to catch your heart.” – Author Unknown
Enjoy something special this year, February 14th. Whether you are with someone or alone, it is a day where we celebrate the idea of romance.
For my dear caregiver friends who have lost their spouses to Multiple Myeloma… I’m thinking of you this Valentine’s Day, as you negotiate another of the many anniversaries without the one who made your heart swoon for so many wonderful years. – Love, Lori
“True love stories never have endings.” – Richard Bach
Tags: postaweek2011, Valentine's Day Wishes
Posted in Misc | 2 Comments »
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