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Our Life

Dave and I are typical. We are essentially the same age, although I am 1 year and 3 months older, which he LOVES to remind me of every year on my May birthdate when I am 2 years older for the summer until he “catches up” with me and is only a year behind. It turns out that marrying older women runs in both our families. His mother is older than his father and my grandmother was older than my grandfather, so we didn’t get any crap on that when we were dating.

We met in college and got married after Dave graduated in 1981 from Cornell University.

He graduated, we got married, moved, both started new jobs and bought a house all in a month! I now wonder if we set the tone for the drama to come later in our lives and I look back on it, not with regret, but with the sense that perhaps I could have been a little less “efficient” and “enjoyed the journey” a bit more.

We moved from beautiful Ithaca, in upstate New York, to the Washington, DC burbs in Maryland. I didn’t want to leave Ithaca. I loved it there. But Dave hated the cold and didn’t have nearly as much fun as I did. Being in the Electrical Engineering program at Cornell meant he was buried in his studies. I, on the other hand, had a job I enjoyed, friends and a social life. I often say, I had all the fun of being an Ivy League Student and NONE of the responsibilities. It was a wonderful time for me. But we picked up and made our move to Washington, DC, which I also loved, as a city. However, I never got to live in Washington. I got stuck in the burbs and I hated it for a very long time. I discovered that I loved the country, small towns, and big cities. I could have any of them. I’m a military brat, so adaptability and flexibility is something ingrained in my very existence. Living out in the middle of nowhere with everyone else piled on top of each other with nothing to do where cars are required, was not something, I discovered, that I cared for. I learned to appreciate fully why people live in the suburbs and what it has to offer in raising your children and making friends, but it is still on the bottom of my list of places I would choose to live. Whenever I would get annoyed with Dave, I would remind him, that I didn’t want to move here, that he said we were moving to Washington, DC and that I had yet to get anywhere close to living in DC! However, I was committed, to our marriage and his success in his career as a telecom engineer. As a seasoned military brat, I adapted and made the best of it, and I did appreciate the people I met and the experiences we had living there for 27 years.

We have two children, our son, Hudson (named after my father, Lt Col James Webster Hudson) and our daughter, Montana. They kept us busy with all their activities.

Introduction

This is a true story, an adventure, a journey, whatever you wish to call it, of my experience caring for my husband, Dave, when he was diagnosed with (MM), a rare blood cancer (1% of all cancers, 14% of the three blood cancers – Leukemia, Lymphoma, Myeloma).

I also cared for my mother, Chris, who had five cancers over a 15 year period. She licked four of them resoundingly, only to succumb to the last one which had gotten into her liver. Continue Reading »

You know how people will often say (including me), “Enjoy the journey”? Well, I wasn’t enjoying this journey, despite the beautiful moments and people I discovered along the way, I found that I would have liked to learn all the lessons, sans the journey through cancer. Thus, my title “Riding the Wave.”

I was dropping my husband off at the Little Rock, Arkansas International Airport to fly home to California in the wee hours of the morning. He had just finished his stem cell collection AND transplant (7 weeks) and we decided he shouldn’t make the long drive home with me in the car to northern California, with me and our trusty, wonderful, yellow lab, Kip (aka: the Kipman, the Kipmeister, Kippers).

Instead, his parents would fly out a couple days ahead of him from their home in Florida and open up the house, buy groceries, pick him up at the airport and care for him. The idea was he would just get home and be in his own bed and recover, while I drove our car home, visited friends along the way, and, believe it or not, had a bit of a break from the daily grind of caring for him. I don’t want you to think I mean “grind” in a negative way, it just is what it is folks, a grind.

Little Rock has a great, quaint, little airport. You can park right out front in 15 min meters with little trouble. So I parked, got his suitcase and carry-on bag out of the car as he was too weak to do this. (Sometimes I wonder what people must think when they see what appears to be a fairly healthy male standing idly by watching his wife hoisting things around! Oh well.) We went into the airport and I got him all checked in. We had a little extra time, so we went to get some coffee, and behind me in line was this wonderful mother and her young adult son. They were bright and happy and smiling despite the god awful hour of the morning.

We struck up a brief, typical, conversation of strangers in an airport and in so doing I discovered that they had missed their flight due to running a little later than perhaps they should have and the long security line. I responded with the appropriate and typical show of condolences for their situation and the young man, smiled broadly and standing very relaxed with his hands in his pants pockets, shrugged his shoulders and said, “Eh, we’re just ridin’ the wave.” I smiled back broadly, as it was certainly my way of thinking after my experience of the past seven weeks in Little Rock (and much longer actually), and I responded with, “Wow! I like that! Much better than ‘Enjoy the journey’!” We had a wonderful moment then as we got our java and I left them at the counter and went to go and sit with Dave. Sharing some coffee before I sent my baby off through the security line to make his way home, alone, without me, in his weakened condition. Then Kip and I would set off for the 2200 mile journey across the southern states toward home.

I liked Riding the Wave because it seemed to better depict our situation. In other words, I’m riding it, one way or the other ’til it brings me into the warm sandy beaches. Sometimes its fun, sometimes calm, exhilarating, frightening, not so fun, full of wipeouts and at times, like cutting through butter when you get it just right. It even drags me back out again from time to time when I reach the shore. I was Riding the Wave alright and I’m still Riding the Wave. I’m hanging on – this sometimes fantastic ride.


"Book Flap"

I’m an incredibly optimistic and upbeat, but also realistic. I “choose” how I want to feel in the most dire of situations. Dave is more pessimistic by nature. This story of our journey to get Dave well, like our marriage, is full of the of our approaches to life. It reflects my deep commitment to my personal beliefs and philosophy, but is full of the realities of each day of caregiving. Somehow I manage (or so I hope) to temper my optimism in deference to Dave while trying to uplift him, get him well, and increase his mental/emotional well being enough to go through all his treatment and tackle his fears – and somewhere in there, mine as well. I hope this is an uplifting, encouraging, sometimes funny journey through what most still feel is a devastating diagnosis, “CANCER!”

While dealing with the day to day crisis of getting Dave well, I have believed that the hardest work was yet to come. How to help Dave to LIVE WITH Cancer.

Synopsis

Dave and I were in the middle of a coast to coast relocation. Our children were safely and securely nestle into college back in Maryland. I was busy tying up lose ends, getting the house sold and packed up, winding up my job and planning to help find my replacement. Dave was already in California, working hard to come up to speed on his new job, staying with a childhood friend of mine and looking for a new home for us to move into.

On the morning of a planned business trip to Las Vegas (June 16, 2008), Dave couldn’t get out of bed. He had been experiencing some back discomfort for a couple of months but had attributed it to moving boxes around and generally over doing it. When the alarm went off at 5 am to get up and catch his flight he was experiencing excruciating pain. He managed to get out of bed and make it to the bathroom, but quickly returned to bed, just to rest a little longer in the hopes that it would pass. It didn’t. It got worse.

Little CJ, age 9, Dan & Sarah’s daughter, hated it when “Uncle Dave” left to go on a business trip. True to her past behavior, she had woken up very early in the morning and camped outside near his bedroom door on the floor with her blanket and pillow. She didn’t want him to leave without saying goodbye. Knowing CJ was outside his door and desperately trying to keep his pain at bay, Dave calmly and quietly called to CJ and asked if she could get her mommy. “Sure!” CJ said, happy to have an important task from Uncle Dave. She ran upstairs to tell her mom, who was getting ready for work, that Uncle Dave needed her right away!

Dave and I are typical. We are essentially the same age, although I am 1 year and three months older, which he LOVES to remind me of every year on my May birthdate when I am 2 years older for the summer until he “catches up” with me and is only a year behind. It turns out that marrying older women runs in both our families. His mother is older than his father, and my grandmother was older than my grandfather, so we didn’t get any crap on that when we were dating.

We met in college and got married after Dave graduated in 1981 from Cornell University.

He graduated, we got married, moved, both started new jobs, and bought a house all in a month! I now wonder if we set the tone for the drama to come later in our lives, and I look back on it, not with regret, but with the sense that perhaps I could have been a little less “efficient” and “enjoyed the journey” a bit more.

We moved from beautiful Ithaca, in upstate New York, to the Washington, DC burbs in Maryland. I didn’t want to leave Ithaca. I loved it there. But Dave hated the cold and didn’t have nearly as much fun as I did. Being in the Electrical Engineering program at Cornell meant he was buried in his studies. I, on the other hand, had a job I enjoyed, friends, and social life. I often say I had all the fun of being an Ivy League Student and NONE of the responsibilities. It was a wonderful time for me. But we picked up and made our move to Washington, DC, which I also loved, as a city. However, I never got to live in Washington. I got stuck in the burbs and, I was not too fond of it for a very long time. I discovered that I loved the country, small towns, and big cities. I could have any of them. I’m a military brat, so adaptability and flexibility are something ingrained in my very existence. Living out in the middle of nowhere with everyone else piled on top of each other with nothing to do where cars are required was not something, I discovered, that I liked. I learned to appreciate why people live in the suburbs and what it has to offer in raising your children and making friends, but it is still on the bottom of my list of places I would choose to live. Whenever I would get annoyed with Dave, I would remind him that I didn’t want to move here, that he said we were moving to Washington, DC and that I had yet to get anywhere close to living in DC! However, I was committed to our marriage and his success in his career as a telecom engineer. As a seasoned military brat, I adapted and made the best of it, and I did appreciate the people I met and the experiences we had living there for 27 years.

We have two children, our son, Hudson (named after my father, Lt Col James Webster Hudson), and our daughter, Montana. They kept us busy with all their activities and typical suburban lives. I worked on and off, but I learned early in my marriage that we were was sold a bill of goods growing up in the ’70s with the idea that we (women) could do it all! In the words of Cokey Roberts, “We can do it all, just not at the same time!” Dave’s profession was the big income producer for us and, I began to find that while we could both work, we couldn’t both have “careers.” It’s just too hard to coordinate conflicting priorities when you are running a home and raising children. I took a back seat to his career for my sanity and that of our family. It was the best decision I made with all its expected pitfalls it was the greatest good for our family. I kept busy by getting involved in my community and did a lot of volunteer work in areas that benefited my family and community; I also worked part-time in other areas that generated some money for the kids, our household, and me. I was involved and, I had two active and charismatic children I became like many parents, “Hudson and Montana’s Mom.” There are still people who I’m sure don’t know my first name. However, it has its perks and, it is a role I enjoyed. So, dreams of a career for “Lori”? Nah, that became just a pipe dream, but that’s OK.

After my mother passed away in November 2001, Dave lost his job, along with most all other telecom engineers during the dot com bust. For some reason, the satellite industry tanked and disappeared very dramatically. Dave had risen from a hardware designer out of college for Digital Communications Corp, in Germantown, MD, to a Senior VP of Business Development with a large company (Loral’s communications company) and, then, POOF it was gone! It was pretty shocking. Our son had just started high school at a private school in Washington, DC. We had a BIG suburban home in a great neighborhood and, I wasn’t working. I was honestly still in the throws of nothingness after my mother passed away. I can tell you that when she became ill this last time, I was working part-time and homeschooling our children. I got Hudson through middle school and off to private high school and then had put my daughter back in public school in the middle of 6th grade due to my Mom’s illness. I couldn’t homeschool them very well from a cell phone at Bethesda Naval Hospital. I would often get a call with them fighting and killing each other while I was trying to get someone to help my Mom who couldn’t breathe or had some other healthcare crisis! It was not fun nor pretty but was, in fact, comical in a twisted sort of way. You will find throughout my adventure that I find humor in things that aren’t all that funny. “If you don’t laugh, you’ll cry” is a very true statement for me and how I look at things.

After my Mom died and Dave lost his job, he insisted I go back to work, and I insisted I wasn’t ready, the kids needed me, I didn’t think I could find a job, part-time, close by, etc. Well, he found me a job. I kid you not. I got an email thread between him and an acquaintance from NASA that he knew through our son’s baseball activities and this guy’s former professor at the University of Maryland. The final comment was, “Yes, we are desperate, have her send her resume right away.” Damn. Long story, short, I was hired by a wonderful man who is the director of an energy research center at the University of Maryland in College Park. Professor Reinhard Radermacher. I’m now a Terp (short for Terrapin, which isn’t a turtle, but a tortoise, native to the Maryland area). The good news was, I had healthcare benefits for our whole family, it was a great “re-entry job” for me, a win-win, I could go back to school (paid for) and finish my Bachelor’s Degree (I have an Associates), and in 2 years, my children can attend UMD tuition-free. Ok, OK, so I was back in the fray. After the first day, I came home and said, “Well, nothing has changed…you have the hard workers, the not-so-hard workers, the incompetents, the gossip, etc.” I loved it.

Dave reinvented himself and got into the wireless Internet business with some old telecom buddies and did some work for AOL, EarthLink, Motorola, and others. It was tough on us, but he was excited about his projects and, I was happy he was working and somehow, we muddled through it all, with lots of support from our friends and family. But it was hard on Dave. Once he was diagnosed with cancer, it was not hard to look back and see just how insane everything had become. I had inklings of it and would get on his case about his eating habits and my concerns, but I was busy and involved with my responsibilities, and I expected him to take care of himself. He was driving each week to Philadelphia and living up there in a hotel room, eating poorly, and then driving home for the weekend. Eventually, he was doing the same thing by air, down to Atlanta each week while working for Earthlink’s wireless division as a Director. Earthlink got a new CEO (theirs had passed away), and once again, POOF, it was all gone!

Eventually Dave got this wonderful job offer in Elk Grove, CA near where I graduated from high school some 30+ years earlier. Imagine that! So we decided to ditch the kids before they ditched us and go for it. Well, I decided. I’m still not so sure Dave was fully into the idea of moving 3,000 miles away. Remember, I’m the military brat, and Dave is, well, Dave – he likes things the same and predictable. He likes warm weather, so my friends and I sort of ganged up on him, and he was extremely excited about the work. I don’t know how much I pushed him or if I just confirmed his decision for him. Oh well. Such is married life.

Anyway, that is the short story of how we ended up in northern California in 2008.

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