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Tag Archive 'Abecma Car T'

“Anybody can sympathize with the sufferings of a friend, but it requires a very fine nature to sympathize with a friend’s success.” ― Oscar Wilde Years ago, when I wrote my opinion piece at The Myeloma Beacon on our incredible success with HBOT (Hyperbaric Oxygen Therapy), it garnered considerable attention from those in that world. It […]

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“…every gift is exactly that, a gift.” – Maya Angelou What a lovely weekend and then extended two days with our daughter and her new husband here in Little Rock! Just what the caregiver ordered for Dave (and me!). I was so heartened when I called her and just casually said, “Hey! Any chance you […]

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“Don’t be pushed around by the fears in your mind. Be led by the dreams in your heart.” ― Roy T. Bennett, The Light in the Heart There will probably be a lot of “MishMash Musings” in the coming weeks leading up to Dave beginning his Abecma Car T Therapy, currently scheduled for Halloween. Perfect if […]

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“And in the end, it’s not the years in your life that count. It’s the life in your years.” – Abraham Lincoln Another stellar day here in Little Rock yesterday. We managed to get the car registered, and so now we are 100% legal! One of my fellow apartment dwellers gave me the “better” Motor […]

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“Love and compassion are necessities, not luxuries. Without them, humanity cannot survive.” – Dali Llama Every day here, I’m meeting and interacting with people in a profound and fun way. It’s like I’m in one giant neighborhood as I meander around from venue to venue. Often, I’m chatting with them while making a purchase or […]

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“Sometimes, the best way to help someone is to just be near them.” – Veronica Roth, Divergent Today I witnessed one of those moments between another couple in the throws of the journey of Myelomaville. My assessment was they are at the beginning of their journey, and I so wanted to go over and say, […]

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Acknowledge simple gifts. There are gifts all around us. I’m an old-fashioned road trip kinda gal, so I ordered an Adventure Edition of a road atlas and a full fold-out paper map of the USA for our road trip home. I’ve already put in several stops and come up with about nine days. Dave has […]

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“Gratitude is happiness doubled by words.” – G.K. Chesterton There is a comfort in routine and things predictable when dealing with our Myeloma crisis. Knowing when we need to go into the clinic and knowing we can just chill until we do.  Today I ran to the Vitamin Shoppe in N Little Rock. Then back […]

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“Medical science has proven time and again that when the resources are provided, great progress in the treatment, cure, and prevention of disease can occur.” – Michael J. Fox So in an effort to learn more about all of this, when I get the chance I ask a few questions of our doctor while we […]

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“Turn off the news and get out in the world. It is full of wonderfulness and humanity.” – Lori Puente What a whirlwind this particular episode in our reluctant Myelomaville adventures.  Our original plan was that Dave would come out and get his T Cells collected on September 13th. (Well really mid-August, but the pharma […]

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  “My heart gives thanks…” – Willam Stanley Braithwaite We had another productive day here today. The VW Dealership sent over a guy to sign the papers on the new car we purchased. I’ll share that fantastic story later.  Then we headed in to get some labs but were late, so we asked if we […]

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“Look for what is good and you will certainly find it.” – Anne Perry We have been on yet another unexpected journey. I’ve been posting snipets at my companion FB page called Riding the Wave (you can search Multiple Myeloma too and it should come up.) My blog has been very quirky and weird over […]

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